---

Handbook of Engaged Learning Projects

HOW DO WE INHERIT OUR BIOLOGICAL CHARACTERISTICS?

Internet Links

Summary

Student Pages

Index

Technology Support

Netscape Basics

Here you can find a wealth of helpful information about your Netscape software and how to overcome any problems you might encounter with it.

Finding Information

Finding what you want on the Internet can be like looking for a needle in a haystack. Online search tools help you track down whatever it is you're looking for.

Helpful Exercises

The following exercises were designed to help you understand human genetic diseases, including the medical facts, diagnosis, probable course of the disorder, and the available management. While these exercises are, of course, optional, you are strongly encouraged to complete them:

Guidelines for Reporting and Writing about People with Disabilities

The University of Kansas and other national associations have endorsed a set of clear guidelines to help you make better choices in terms of language and portrayal. The "Guidelines" explain preferred terminology and offer suggestions for appropriate ways to describe people with disabilities.

Understanding Gene Testing

This represents an effort by the National Cancer Institute and the National Center for Human Genome Research to provide basic information about gene testing and key genetic concepts. This booklet also provides answers to a number of frequently asked questions about the science, potential benefits, and potential risks of gene testing.

Genetic Counseling: Coping with the Human Impact of Genetic Disease

Genetic Consultation/Counseling: The Process

Describes what they do and how they do it.

Genetic Testing-Health Care Issues: An Interview with Dr. Neil Holzman

An excerpt from an interview with Dr. Neil Holzman that took place at the "Winding Your Way through DNA" symposium at the University of California, San Francisco in 1992. Dr. Holzman is an M.D. and a health policy expert.

Genetic Conditions/Rare Conditions: Support Groups & Information

Medical Genetics, University of Kansas Medical Center professionals, educators, or individuals seeking information on genetic conditions or birth defects may find this list helpful; find additional information through the national and the international organizations listed below; or contact a genetic counselor or clinical geneticist.

OMIM Home Page--Online Mendelian Inheritance in Man

This database is a catalog of human genes and genetic disorders authored and edited by Dr. Victor A. McKusick and his colleagues at Johns Hopkins and elsewhere, and developed for the World Wide Web by NCBI, the National Center for Biotechnology Information. The database contains textual information, pictures, and reference information.

Mendelian Genetics, an interactive computer program which covers the main concepts of genetics

Genetic Counseling, March of Dimes Birth Defects Foundation

Newborn Screening

The Virtual Hospital™ uses the World Wide Web (WWW) software technology to store, organize, and distribute multimedia textbooks including the Clinician's Handbook of Preventive Services.

DOE Primer on Molecular Genetics

This primer was prepared by Denise Casey (Human Genome Management Information System - Oak Ridge National Laboratory) for the1991-92 DOE Human Genome Program Report.

Home Page for Genetic Professionals

Information for genetic professionals at the University of Kansas Medical Center is updated regularly for genetic counselors, clinical geneticists, and medical geneticists with links to a variety of clinical, research and educational resources.

Genetics & Public Issues

The National Center for Genome Resources (NCGR) in Santa Fe, New Mexico is assembling educational and informational resources for the public, physicians and other professionals. This information is selected to help the public direct and make informed decisions about genetic information, technology and services. It is also selected to help industry and policymakers guide the application of genetic research and biotechnology. .

Geneticists & Ethicists Mentor Network

Teachers and students can send questions to professionals in genetics, law, public policy, and ethics.